Showing posts with label Autism and marriage. Show all posts
Showing posts with label Autism and marriage. Show all posts

Wednesday, September 14, 2011

HOW TO FENG SHUI FLYING SOLO-WHAT A DAY LOOKS LIKE WHEN DAD IS AWAY

THREE DAYS WITHOUT DAD-WHAT’LL WE DO?  FENG SHUI—!
Zach stuck on the stairs with two of
his favorite kick-it balls

Dad just left.  The house is quiet.  Zach has had three seizures these past two days.  The huge bug eyed monster of “alone” is staring back at me; a bit intimidating.  Zach is stuck and confused, he’s setting on the stairs, it’s almost 1:00 p.m. and he just finished his breakfast; no walk today, no kick it either.  Mom has had no breakfast save three cups of coffee and one jasmine pearl green tea.   Lunch thus far, a handful of sunflower seeds and a banana...

I anticipate this will be an uneventful day, but I’ve imagined that before and things happen; unexpected interruptions and Zach’isms no amount of planning can accommodate.

What I’d like to do; get a cup of tea, read and study, write, watch a movie, concoct some gooey gourmet food, eat chocolate and ice cream, curl up on the couch for a nap, take a nice slow walk in the sunshine and go directly to bed with a good book…Life, on the other hand, has asked me to care for the “least of these” as though he were Christ himself.  This time, I will choose Life rather than be self indulgent; I can care for me in the midst of life lived abundantly.

…An hour later….My gourmet lunch today…it came to consists of cold raw milk poured over Nature’s Path Heritage Flakes.  Rather than hunching over the counter and jamming soup spoonful after scoop into my mouth, I sat at the kitchen bar and ate like a normal person, albeit somewhat ravenously and with milk dripping off the end of my chin.  I had to stop myself, an entire half-gallon of raw milk, as well as a newly opened box of cereal almost vanished...

…At 2:00 p.m., Zach is beginning his bedtime routine.  He, with his very sleepy eyes, is covered up in his freshly changed double bed with a plastic container of foam numbers and letters open before him.  He goes through this routine every night picking just the right number, shape or letter’s to take to bed with him.  Tonight he has reclined to do this very important chore that is usually done hanging off the side of the bed.  Apparently his energy level is on par with mine; not high enough to lean, or hunch.

I will go in and read Zach his bedtime stories soon, he may, or may not finish his very early dinner, watch a movie in bed and fall asleep.  I presume my evening will follow this pattern very closely; although, after consuming such large amounts of cereal, my early dinner may be popcorn popped in coconut oil, topped with sea salt and a fresh, high quality (light-yellow in color) brewers yeast along with…perhaps a few ounces of dark chocolate.


The soundtrack to Anne Of Green Gables is tinkling in the background-I stand at my front door and gaze across our very warm valley on this September day where Extreme Home Makeover is wrapping up yet another marvelous projects for a family in our area with not one, but two biological autistic children, the McPhails.  Now that is some serious feng shui!  I sigh holding my mug of tea, there is a lot of good out there as well as in here.  We are not alone and really nice things happen to brighten life here and there.  A cup of tea, a view and a comfy chair go along way in my world.

After Zach falls asleep, I’d like to think that I will put on my grandmother’s apron and toss together some random ingredients and make myself a "fun healthy for me" meal, pour myself a small glass of wine and treat myself to a quiet simple dish eaten in reflection and solitude and then (if it was tasty) I would post the recipe with this blog.  We’ll see.  I laid awake for three hours last night (raging hot flashes) and then at 1:30 a.m. tended a very post-ictal young man.  I wish I were bionic, but alas, I am wrapped in real flesh with warm blood coursing through my veins.  I pat my, full of Heritage Flakes belly, bed I think won’t come fast enough...

…Three hours later, Zach slid out of bed and is setting on the kitchen floor with his untouched supper, his water cup and the foam toys he picked out; enter the unexpected…he is stuck…will he eat, will bedtime ever come?  Will I get that quiet house ‘er?

6:00 p.m., I hear little rabbit nibbling sounds behind the butcher block…hope springs!…

Fast rabbit, 6:15 he’s done eating.  It’s finally quiet; wish Web were here to enjoy the sunset and a glass of riesling with me.  Pj’s, glasses perched on nose, iced rooibos tea and some reading it is!

Day two…Zach slept till 4:40 a.m., this is a very good miracle!  So it wasn’t 6:00 a.m., it was better than the normal 2:30 a.m.  *I feel rested-I feel good-I feel ready to care as I should*.  The fuel behind this happy dance is that I’m aware how I feel most days.  Thank the living Life for gracing our night with much needed sleep!  Shower for Zach (though I am still in my pj's), meds and supplements in Zach (though my supplements lay on the counter), breakfast made for Zach (no breakie for mom), coffee into me….toy time!

Whatever this day holds, I’m ready to do my part, as Web/Dad teaches a group at Sun River about the powerful meaning of christian marriage.  Thus far the buzz is, it has been well received and just what the body needs to hear.

2:00 p.m.-One hour to the Extreme Home Makeovers “Move That Bus!”  How wonderful for this deserving family!!

3:00 p.m. and they’ve most likely “moved that bus”.  I think I can hear the cheering and tears from my hilltop; perhaps just in Spirit.  Go McPhails!!  Bedtime for Zach.  Those seizures can take a lot out of a young man.  Mom is going to study and write; maybe post this blog.

Second day Foodie in the kitchen, while Zach snores on the couch for two hours.

Southwest Chicken Dip

4 chicken breasts cooled, cooked and shredded, or chopped
1 tsp kosher salt
1/2 cup chopped cilantro
4 green onions chopped
1/2 sweet white onion
1 avocado chopped finely
1 4oz can diced green chilies
1 4oz can shoepeg corn
1 4 oz can mexican corn (or for the canned corn, cut corn off of three ears roasted corn[leave husks in tact, soak ears in a large tub of cold water for 2-6 hours, roast in husk on barbecue.  Peal and cut the corn off of the cob])
DRESSING
1/3 cup soy free Veganaise
1 Lime, juiced
1/2 lemon juiced
dash of cumin

Mix together and serve with gluten free Beanitos corn free chips.  Makes a great light summer meal.

Tomorrow marks day three; four hours of respite, but….oh dear...I have a routine mamo, what an awful way to spend blessed respite hours, but alas it must be done and ’tis better done without a twenty-year-old autistic in tow.  Dad will be home tomorrow!!  I think we did this!


OPTIMALLY WHEN GOING IT ALONE, MY FENG SHUI’ED DESIRES LOOK SOMETHING LIKE THIS—
Kick-it

There would be no seizures.  And one of the days, we would have a long stint of respite care.  I’d call ahead and book myself an hour long massage and a pedicure at spa and schedule lunch at the Dragonfly with my sisters, or a friend.  I would have saved enough money to go to my favorite used clothing store, Avant Garb in Ashland-just to look, or maybe I’d find that desired thing-a pair of black cowgirl boots with flair-then I’d loop my purse over my shoulder and lolly-gag along the streets of the very picturesque pre-autumn sun-filled Ashland, Oregon, with a cup of joe from Noble Coffee.




Zach on his run/walk
chair time
Zach would be happily playing kick-it in the yard with one of his lovely respite care givers.  They would fix him his favorite noon meal (organic hot dogs, pickles and organic strawberries and a banana), take him for his midday walk/run and play toy-toys with him on the couch and read, Winnie The Pooh and Tigger Too, his favorite book.  He would be clapping, bouncing like Tigger and wearing a smile from ear to ear all day long.



After a quick trip to the Ashland Food Coop to snatch up a few of my favorite items, chocolate, salami and cheese, a nice red wine and perhaps a warm freshly baked baguette to go with.  Zach would welcome me home happily and I, I would be glad to be home on our quiet hilltop.  He and I would have some time to play in the yard, me with my sparkling lemonade, before the onset of his bedtime routine.  I’d fix dinner for him and place it on the plate prettily, put him to bed, give him the royal treatment; movie, dinner in bed, books read, a good melon scratch and some time beside him on the pillow, head to head-love pouring from one noggin to the other.
Everyone should have a tea set and a
teatime, or two in their day.


I’d click my ruby red slippers and soothing music would begin, maybe a little Jack Johnson, pour a little boysenberry iced tea into a pretty cup, or perhaps some wine, arrange my, no doubt, colorful dinner on a white stoneware plate while doing a little jig, put on a good chick-flick, or pick up a good book, perhaps thee Good Book and curl up on my very soft brown couch and enjoy a spot of serenity.  I’d hear Zach snoring softly in the monitor.  The house would be very quiet; I’d lock it up and wander up the stairs, climb between two white line dried cotton sheets and Zach and I would sleep till 6:00am without waking.


Feng Shui, what it boils down to-making the best of what we have; we scoot unpleasant out the door and replace it with helpful and pleasant and with the mind, we turn all happenings around till we find the good spot.  Happy’er life!

Coming soon, In Pictures-One Week Feng Shui’ed-Our Family Vacation and a Big Ol’ Mountain Wedding and right on those high heels, The Healing Laughter of Sister Time.

Monday, June 20, 2011

How the Flug Pooh did we make it to 31 years?


June 14, 1980….
We were clueless as to what was coming down the pike on that blissful day, June 14, 1980.
Fourteen years later, it got all tangled up.  We hit the knot of a special needs child-we'd hit the flung pooh years.  I wondered if we'd become a statistic, you know, one of the four out of five marriages with special children that ends in divorce.  We'd agreed that divorce was not in our marital vocabulary (I'm sure everyone agrees to that early on).  However, we never dreamed we'd have this very difficult mountain accent in our marital journey.  We thought, happily ever after, but "happily" we have found, is hard fought for.  Still, it was forever, for us…so 'slowly-by-slowly' (as my Ugandan friend Jaja would say), we fung shui'ed our flung pooh marriage (which wasn't really flung pooh'ed, necessarily, just high centered on autism).

The early years….

The latter middle years….(oh how I wish my belly still looked like that!)


The middle years….

A few years ago…and counting...

Tuesday 
we had seven hours of giddy freedom, nonfat lattes setting in the cup holders, backpacks and snacks loaded, we bombed down interstate five in "Ol' Silver, my Monero.  We were on our way to the Shasta Wilderness area to hike and picnic for our anniversary.  Zach was comfortable, at home, and in the capable hands of his reliable caregivers.  


With this blog in mind, I asked Web why he thought we'd made it thus far in our marriage.  We came up with wit (very important), grit, vision for the future and love that grows into the strong vine of commitment, with a little hill of hope and a molehill of maturity (the mountain I believe, is a desire to please God and the heart and head to know what that is).  We are committed to each other as best buddies, patriarch and matriarch of this family that we have helped to create, to stand beside the other through this tough go, so that the proverbial dream (Lord willing) of, "two rockers on the front porch, glass of lemonade and grandchild on the knee" becomes a reality. 























Sometimes, I'm sure we both want to run away, I have my days for sure, but thus far we haven't, for long anyway (a drive, a hike, or a bike ride and we're back at it).  We cry together, talk openly about our feelings and encourage each other to look on the positive side when we feel we can't go on, I mean, five all-nighters in a row is killer…but somehow, we keep going because, opting out, we feel, would be an assault against our mutual trust and love.  Everyone looses.  We would become one of the four out of five marriages in families with special needs that slide into the ditch…and besides, we’ve always liked bucking the odds.  Bottom line-we really like each other…and thinking back, no one said the words easy, but I sure thought it.

Anyway, back to our anniversary road trip…we bought ready made sandwiches from our local health food store, grabbed some kefir water, some fruit, chocolate bars and a bag of chips.  We jacked our jaws like a couple of old women.   The weather was in the 80’s for the first time this year, the moon roof on the car was open wide, the soundtrack to, The Horse Whisperer hummed us down the long winding country roads; on either side, pastures dotted with cattle and horses (the aroma of freshly mown hay...livestock manure…seriously, I could get high on country).

When we arrived at the Shasta Lavender Farms (mtshastalavenderfarms.com) we found that the lavender hadn't bloomed yet, ding-dong, we couldn't pick a bushel like we'd hoped, but we enjoyed our cup of lavender lemonade and a visit with the manager whom we found, also has four children, two with special needs.  Dear lord, there is always someone with a harder go.

The warm car, this nice quiet space with nothing pressing…we couldn't make a decision to save our lives.  Shasta was just so far away and the roads to get there…so off roads vehicle'ly.  We ate our sarnies on a concrete picnic table near Lake Shastina (we arrived at this rather stark picnic area via paved roads), packed up and came home, tucked Zach into bed, ate strawberry shortcake on the couch and watched a fun movie (Bottle Shock); laughed our heads off and went to bed satisfied with the life we've made of flung pooh (we decided, home is the best because that is where Zach is).  It was a good day, as many are.

Contentment is learned, I'm still being educated.  I had to open my eyes wide and take in the beauty of simple everyday things rather than closing them and wishing for things that could never be (I believe in biblical terms, this "wishing" is called "lusting", but lusting isn't as pretty a word as wishing).  Enjoy a few hours away from the pressing, an evening drive, or reading a Winnie The Pooh book to my nineteen-year-old, while I sip something delicious from a favorite mug.  White sheets drying on the line, or moving slowly with the sun as it sets, the soundtrack from Out Of Africa sparkles in the background.  My wide open eyes widen even further when I see Zach slip, what looks like the spine to one of my antique books under the crack in the door, it is in fact just that, he ripped another one :-/ and not only that, but found a good use for it he thinks (back and forth, under the door it slides).  This letting-go, this slowing down, it is healing for me, stress relieving, because in my world and most likely your's too, I live in the midst of feng shuied chaos.  Some days, the ability to breathe through, smile and look for the good, means the difference between withering, or blooming.  Let's face it, sometimes the good is hard pressed to find, but press in and you will find.

Simple Home, it certainly is where Zach prefers to be nowadays and because he is a treasure to us, we prefer to be here with him, most of the time.  It wasn't always that way.  A long time ago, we decided that if this was where we were going to hang, or be stuck, however we're looking at it that particular day, we'd make it as pleasant as possible; and we have.  A semblance of order, candles (I have a deep need for flickering) and soothing music (Zach seems to like my soundtracks), a big library (one can never have too many books, or soundtracks), a growing dvd collection to choose from, but our favorite thing is to take in our view, when time allows us to take a peek, we thank God for placing us high on a hill with a little space to breathe.  Home is, well, it's cozy-home and the landscaper/handyman (Web) is kind and really nice to look at :-) and I like the cook to (me).



Three pink recipes I came up with, which helped me work my way out of a gray day.


Lavender Lemonade
Fill pitcher half full with ice cubes
Pour 1 can organic frozen lemonade into pitcher, and make according to the directions except leave out one can of water, or you can squeeze your own and sweeten with organic maple syrup.
Steep 1 1/2 tablespoons of culinary lavender in 1/2 cup boiling water for 4 minutes, strain (push lavender buds into the strainer with the back of the spoon to get all of that good lavender flavor out, and add to your prepared lemonade.




Pink Rosemary Pate (gf)
2 tablespoons olive oil
1 lb organic chicken liver
Salt to taste (chicken liver can take the salt)

Sprinkle organic olive oil into a 9x13 glass baking dish, add 1 pound of organic chicken livers, salt well with kosher salt, or sea salt and bake at 350 degrees for 45 minutes.  Let cool.

2, or 3 tablespoons coconut oil
1 small onion, diced
1 sprig of fresh rosemary
1 medium beet
2 large mushrooms (I used small portobello, enough to make 1/2 cup sliced)

On the stove top in a dutch oven, place 2, or 3 tablespoons of coconut oil, 1 small diced onion, clippings of 1 sprig of fresh rosemary (snip soft green tips with kitchen shears), 1/2 cup sliced fresh mushrooms and one medium beet diced into 1/2 inch cubes.  Cover and steep till tender, about 25 minutes.  Let cool slightly before adding to the blender with the cooked chicken livers, blend with 1/4 cup of melted organic butter till smooth.  Serve with rosemary parmesan flat bread, or rye crisp.  Simi sweet, savory spread.

Rhubarb Strawberry pie (not gluten free, but could easily be by substituting a gf flour of choice to your pastry recipe.  Zach doesn't eat pie (but doesn't have to be 100% gluten free) so we can make ours with wheat flour)  This recipe is from my mother's old Meta Givens Modern Encyclopedia of Cooking.  Published in 1947.  Not a lot of gluten, or dairy free recipes back then.

1 1/2 lb.  rhubarb (from 3 1/2 to 4 cups cut)
1 cup sugar
1 cup sliced strawberries
1/4 cup butter cut into pats for placing on top of the fruit before adding top crust (My mother's addition)
2 tablespoons quick-cooking tapioca
1/8 teaspoon salt
Pastry for 9-inch double crust pie
1 tablespoon butter

Wash rhubarb thoroughly, trim off leaf and stem ends and discard.  Cut stems into 3/4-inch length.  Combine sugar, tapioca (may also use 1/4 cup flour, or substitute corn starch for tapioca if you prefer) and salt, add the rhubarb and mix thoroughly.  Fit pastry into pie pan.  Turn rhubarb mixture into pastry-lined pan.  Roll out pastry for upper crust and cut a design for steam vents.  Brush edge of lower crust with cold water just before laying on top crust.  Lay upper crust over pie and press edges together to seal; trim off excess dough.  Let rest 10 minutes and flute rim as desired (my mom had a three finger flute that she taught me, but I've found that every baker does it differently).  Bake in hot oven (450 degrees F.) for 15 minutes, then reduce heat to 325 degrees F.  (moderately slow) and bake for 30 minutes longer, or until rhubarb is done. Serve warm or cold with whipped cream.

Coming soon; Supplements and natural remedies for the autistic that have worked for sleep, clarity and calming and allergy friendly cookies that hold together and taste great.